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Zmiana postrzegania raka płuc.

ZAPRASZAMY DO ALK POSITIVE UK

Zarejestrowana organizacja charytatywna założona przez pacjentów, ich rodziny i przyjaciół.

 

Rak płuca ALK-dodatni jest stosunkowo rzadką postacią raka płuca spowodowaną nieprawidłową rearanżacją genu kinazy chłoniaka anaplastycznego.  ten  zdecydowana większość pacjentów to osoby niepalące,  połowa ma mniej niż 50 lat, niektórzy są znacznie młodsi, a większość to kobiety.  Założona w 2018 roku, naszym celem jest:

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Our Vision
We want everyone in the UK who is diagnosed with ALK-positive lung cancer:
To receive the best care possible
To live their best lives possible
To live for as long as possible
Support

Support

We provide a platform where patients and their families can exchange information about their diagnosis and treatment, and where they can give and receive mutual support.​​

Empower

Empower

We are a source of information for patients so that they are better informed about their condition and, as informed patients, they are empowered to ensure that their health care providers employ best practice.

Advocate

Advocate

We advocate on behalf of ALK-positive patients to ensure that they receive a high level of care wherever they live in the UK.

We are recognised by NICE (National Institute for Health and Care Excellence) as an organisation to be consulted on new ALK-positive treatments. We work collaboratively with other relevant organisations and have undertaken several joint projects. We attend conferences of lung cancer oncologists and nurses where we promote the services that we can offer their patients. 

After 18 months of asking, I finally got a brain scan, thanks to the information I learnt on this site. My ONC nurse told me the last time that I spoke to her that she would be led by me as I know more about ALK+ than she does.  This is all because of the work that has been done by this Charity.

- Valerie

We found today’s meeting to be really useful in exploring your already extremely helpful written submission in more depth and helped us unearth issues that were either new or not completely understood such as the real meaning and consequences of certain side-effects. Your insight was particularly helpful as you were able to speak from a personal point of view as well as the wider perspective.

- NICE

My husband's oncologist told him that she was on a Zoom conference with our Chair, Debra. She was very impressed and said that Debra's words had given her hope and had really impressed her.

- Lynsey

Jeśli mieszkasz w Wielkiej Brytanii z ALK-dodatnim rakiem płuc lub jeśli jest członkiem rodziny lub bliskim przyjacielem, przyjdź i dołącz do nas, wypełniając swoje dane poniżej, a my skontaktujemy się z Tobą
lub zadzwoń 07783 134437

Dziękujemy za przesłanie!

Kim jesteśmy i jakie są nasze cele

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Zbieraj fundusze, weź udział  lub wpłać

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Dowiedz się więcej o raku płuc ALK+

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Przydatne dokumenty, informacje i linki

Dowiedz się więcej o raku płuc ALK+ w świecie medycznym

Zakup i  wynająć towar ALK Positive UK

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